Monday, August 13, 2007

....and the doctor said

I planned to update this earlier today but wasn't able to get to it. Here we go....

In reference to the MRI, Dr. Henry said that they would be looking for a brain bleed or Cerebral Palsy. He said wanted to know if I'd been sick during my pregnancy with Jack, sick like with a virus. It seems to me that I had a cold at one time, but I'd have to look back in my blog to check for sure. Anyway, he said that something like that could have caused a brain bleed in Jack. I know what you're probably thinking, why on earth would he tell me this, right? I'm just the opposite - I want to know information like this.

My Aunt, who is a nurse, wanted me to make sure that the doctor remembered that Milroy's disease runs in Justin's family. When I was pregnant with Jack (I think it was with Jack - I've been pregnant a lot
Happy) we had genetic counseling. We learned at that time that Milroy's (Lymphedema ) could attach itself to any organ. Dr. Henry hadn't thought of that, so thank you Jenni for thinking of that for us.

He asked if Jack's had any seizures. Uh, no - I would have called the doctor 2 seconds after he was done - don't kid yourself. He asked if he was having silent seizures. I don't believe he's having any kind of seizures. Dr. Henry wants Jack to have an EEG just to make sure. That's scheduled for next Monday.

I brought some fruit puffs so that Dr. Henry could watch Jack pick one up with his right hand and then one with his left hand. He seemed to be quite surprised. With his right hand, Jack picked up the puff and put it directly in his mouth. With his left hand, Jack struggled to pick it up. When he finally got it in his hand, he held it for a bit before trying to get it to his mouth. More times than not his misses his mark when using his left hand.

I told Dr. Henry that many times Jack will have his right hand flat while the left hand is clinched in a fist. He saw it for himself a few times as well. He said it wasn't normal for a baby of Jack's age to do that.

Remember the bell story? Dr. Henry isn't so sure that Jack hears very well out of his left ear. He said there was nothing that could be done right now for him, so we'll just leave it as is. He showed me some things to try with him to see if he's hearing or not. It seems to be a bit of a 'back burner' type thing, which is fine. His main concern is his left side and the fact that Jack isn't sitting up by himself. However, he is getting better at that too. We've noticed that when Jack is sitting by himself, he falls to the left. I know that's probably of no surprise, but I thought I'd say it.

As for waving or holding his arms out to be held, Dr. Henry said that Jack falls into the 20th percentile - which is low, but with help that can be fixed.

I'm sure I've left something out, however, I made a video blog so that I wouldn't have to type all of this, but our computer is slow and wouldn't load it to youtube. Now it's 10:30pm and I'm too tired to care. The kids are all in bed and I'm heading there too. Tomorrow morning is our first session with PT/OT.

Thanks to everyone who checked in today. It's very much appreciated.

13 comments:

Miah said...

I am so glad you found time to update today. I thought about you a zillion (ok-not quite that many) times today. I am also glad that Dr Henry is giving it to you straight and not buffaloing you.

I know its tuff, but keep on truckin girl. You can do it! I am keeping you all in my heart and prayers.

Just Mom said...

Jack seems to be in good hands with Dr. Henry. He seems to be doing all he can for Jack. I'll continue praying for you all.

I hope Jack enjoys his therapy sessions today. They do a lot of fun things with the kids.

Just Mom said...

Forgot to add ... Yay Kerrie's aunt!

Anonymous said...

Thanks for the update!

Anonymous said...

Thanks for the update Woody. I was thinking about you a lot yesterday. I am glad to hear that you will have some answers soon. Keep us posted. Thinking about you and praying for you.

Loni

Shannon said...

I'm so glad you're finally on your way to some answers. You know all us Fishies love you all!

An Iowa Mom said...

Thank you for the update.

Hang in there. It sounds as though Dr. Henry is very straight forward and will be committed to doing everything he can to help Jack.

Let us know how PT/OT goes! We're all thinking of you!

Heidi Jo said...

kerrie,
will the new test he ordered and the mri give him answers to the things he is looking for?

thanks for the update...your persistance will pay off for him. he is a blessed little boy to have such an observant and loving mom.

Jamie said...

Thanks for the update!! I will keep thinking about you guys and hoping everything works out!!

Take Care!!

Lori said...

Thanks for updating us.
Sounds like your doctor is very helpful.
I will be thinking about and praying for you guys.

Kari said...

Hang in there!! You are doing everything right! There will be tough days ahead with tests/doctors/therapy/etc, but you are STRONG! I know that if anyone can handle this you can, and Jack is SO lucky to have you for a mom! I will keep you in my thoughts and prayers.

Tess said...

Thank you for the update. I have had you in our thoughts and prayers! I hope you will get the answers you are looking for.

Take care and keep us posted!

Tess

the boedecker family said...

I agree with making sure he gets the amount of therapy he should, better more than not enough!! Your doctor sounds like he is really on top of things and that is great!!!